Just click on the links below to go to these web sites & stories.

National Down Syndrome Congress - The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome. It is the purpose of the National Down Syndrome Congress to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.

National Down Syndrome Society - The mission of the National Down Syndrome Society (NDSS) is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy.

Down Syndrome Caucus - Congresswoman Cathy McMorris Rodgers of Washington state is the mother of a son with Down syndrome. She was instrumental in forming the Down Syndrome Caucus.

ODAN - The Ohio Down Syndrome Advocacy Network - DSAV is a member of ODAN, a group comprised of Down syndrome associations across the state.  ODAN works to ensure all counties in Ohio have Ds materials and support available to families as well as working to broaden the support and advocacy for those with Ds in our state.  For more information contact DSAV.

Click on this link to view the NDSS Dreams video:  DREAMS

In October 2008, DSAV donated new Down syndrome materials to all libraries in the five county area that we serve. To borrow current, up-to-date materials, click on the link to the library closest to you and search their catalog. Please be aware that some libraries still have some outdated resources in their systems. Publications printed within the last 10 years are the most accurate.  If you have any questions about books or reference materials, e-mail us.

Youngstown and Mahoning County  - search entire 16 branch database

Warren-Trumbull County Public Library - search entire 6 branch database

Trumbull Independant Public Libraries:

Bristol Public Library
Hubbard Public Library
Kinsman Free Public Library
Girard Free Library
Newton Fall Public Library
McKinley Memorial Library - Niles

Columbiana County Public Libraries:

Leetonia Public Library
Columbiana Public Library
Carnegie Public Library - East Liverpool
Salem Public Library
Minerva Public Library
East Palestine Memorial Public Library
Lepper Public Library
Wellsville Carnegie Public Library

Mercer County Public Libraries:

Community Library of the Shenango Valley - Sharon
Grove City Community Public Library
Greenville Area Public Library
Mercer Area Public Library

Lawrence County Public Libraries:

New Castle Public Library
F.D. Campbell Memorial Library
Ellwood City Area Public Library

Down Syndrome Center at UPMC - Pittsburgh

Down Syndrome Program at Akron Children's Hospital

Fairhaven Program - Trumbull County DD

Mahoning County DD

Mahoning County DD Special Olympics

Columbiana County DD

ARC of Mercer County PA

Easter Seals

Mahoning County Public Special Olympics

Learning is Everywhere - an information program for families of children birth to age 5 in Pennsylvania.

Pennsylvania Promise for Children program - statewide educational website

USOD Cleveland Area Support Group - greater Cleveland area parent support group

Down Syndrome Association of Central Ohio

Down Syndrome Association of Greater Cincinnati

Miami Valley Down Syndrome Association

Spec4Us - Does your child with Down syndrome need glasses?  Are you having a hard time finding frames that fit? Visit this web site to see a line of eyeglass frames developed for our children.

These frames are available locally at:

• Michael Woloschak OD,

2670 S. Raccoon Rd.   Ste. 1

Youngstown, OH   44515 

330-799-3937

• Spectacle Spot

7087 West Blvd., Ste 4

Boardman, OH 445l2

(330) 758-0767

Hattie Larlham - Hattie Larlham is a non-profit organization that provides care to children and adults with developmental disabilities.

Band of Angels Press -Band of Angels celebrates children with Down syndrome and supports them in reaching their full potential, beginning with providing accurate and positive information about Down syndrome at diagnosis.

Woodbine House - publisher specializing in books about children with special needs.

Down Syndrome Heart Group - a charity in the UK offering support and information relating to heart conditions associated with Down's Syndrome

Cleveland Area Down syndrome photogrpaher - a support and advocacy group based in Parma, Ohio.  Their founder Pamela, is a professional photographer who's mission is to reduce the number of abortions due to a prenatal diasgnosis of Ds by publishing beautiful books capturing the amazing capabilities of our children, showing they are a blessing not a burden.

Karen Gaffney Foundation -Karen Gaffney, is an inspiring young woman with Down syndrome, championing the journey to full inclusion in families, schools, communities and the workplace for people with Down syndrome or other developmental disabilities.

Chris Burke Web Site - Chris Burke; "Corky" from the hit TV series Life Goes On along with Joe & John DeMasi have been delighting audiences throughout the U.S. and Canada with their inspiring, uplifting and entertaining music for over a decade. The trio brings a message of love, inclusion and celebration to the hundreds of concerts, schools, festivals, conferences and conventions that they perform at each year.  An inspiring advocate for those with disabilities, Chris says - "We've all got disabilities. It's what we do with our ABILITIES that counts!"

GiGi's Playhouse - GiGi’s Playhouse is  a model awareness center that has inspired other communities throughout the country.

Program opens doors for special needs students

Erin Gannon Story - WQED - This is a wonderful news story on the life and accomplishments of a wonderful young lady with Down syndrome in Pittsburgh, PA.  Aired December 11, 2007.

These are great video resources produced by professional videographer, Will Schermerhorn of Blueberry Shoes productions.   Down syndrome films

Super Duper Inc. is a great web resource site for parents and educators. They offer a number of products and FREE resources. 

Keynote speech at the National Down Syndrome Congress click here:  Stand Tall